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Vol. 46. Issue 6.
Pages 325-331 (June 2010)
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Vol. 46. Issue 6.
Pages 325-331 (June 2010)
Special Article
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COPD. A Model for Using Advance Directives and Care Planning
La EPOC: un paradigma para el uso de directivas previas y la planificación anticipada de decisiones
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Azucena Couceiro Vidal
Corresponding author
acouceiro@arrakis.es

Corresponding author.
, Andrés Pandiella
Unidad Docente de Humanidades Médicas, Facultad de Medicina, Universidad Autónoma de Madrid, Madrid, Spain
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Abstract

Decision-making in COPD is complicated by the lack of clear prognostic factors. In this clinical situation it is also necessary to include the desires, values and choices of patients. The problem is more complex in the critical episodes, where the patients are incapable to make decisions. The instruments that allow incapable patients to represent themselves, the kind of patients who could benefit from its use, and the Spanish legislation on the matter, are presented in the first part of the work. The paper goes on to explain how to apply advance directives to the case of COPD. The article concludes that the appropriate use of advance directives and advanced care planning increases the quality of decisions at the end of the life of the patients with COPD.”

Keywords:
Chronic obstructive pulmonary disease
Advance directives
Rejection of treatment
Quality of life related to health
Advance care planning
Bioethic
Resumen

La toma de decisiones en la EPOC es compleja por la ausencia de indicadores pronósticos claros. En estas situaciones clínicas es aún más necesaria la introducción de los deseos, valores y elecciones de los pacientes. El problema es aún más complejo en los episodios críticos intercurrentes, en los que el paciente no suele ser capaz de hecho. En la primera parte del artículo se definen los instrumentos que permiten que un paciente incapaz se represente a sí mismo, el tipo de pacientes que más se pueden beneficiar de su uso, y la legislación española al respecto. En la segunda se aplica al caso de la EPOC. El artículo concluye que el uso adecuado de las directivas previas y la planificación anticipada de decisiones incrementa la calidad y el fundamento en la toma de decisiones al final de la vida de los pacientes con EPOC.

Palabras clave:
Enfermedad pulmonar obstructiva crónica
Directivas previas
Rechazo de tratamiento
Calidad de vida relacionada con la salud
Planificación anticipada de decisiones
Bioética
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References
[1.]
Ley 41/2002, de 14 de noviembre, básica reguladora de la autonomía del paciente y de derechos y obligaciones en materia de información y documentación clínica. BOE n° 274, de 15 de noviembre de 2002.
[2.]
J. Júdez, F. Carballo.
Análisis de los frutos del SUPPORT: 39 artículos generados por el mayor estudio descriptivo de intervención sobre enfermos críticos al final de la vida.
La Bioética lugar de encuentro, pp. 249-263
[3.]
I.M. Barrio, P. Simón, J. Júdez.
De las voluntades anticipadas o instrucciones previas a la planificación anticipada de las decisiones.
Nure Investigation, 5 (2004), pp. 1-9
[4.]
D.K. Martin, L.L. Emmanuel, P.A. Singer.
Planning for the end of life.
Lancet, 356 (2000), pp. 1672-1676
[5.]
J.M. Teno, T.P. Hill, M.A. O’Connor.
Advance Care Planing: Priorities for ethical and empirical research (Special Suplement).
Hastings Center Report, 24 (1994), pp. S1-S36
[6.]
P. Simón, M.I. Tamayo, I. Barrio.
Advance directives in Spain. Perspectives from a medical Bioethicist approach.
[7.]
D. Breen, T. Churches, F. Hawker, P.J. Torzillo.
Acute respiratory failure secondary to chronic obstructive pulmonary disease treated in the intensive care unit: a long term follow up study.
Thorax, 57 (2002), pp. 29-33
[8.]
J.F. Solsona, G. Miró, A. Ferrer, L. Cabré, A. Torres.
Los criterios de ingreso en UCI del paciente con EPOC. Documento de reflexión SEMICYUC-SEPAR.
Med Intensiva, 25 (2001), pp. 107-112
[9.]
J.J. Soler, M.A. Martínez.
Factores pronósticos de la EPOC.
Arch Bronconeumol, 43 (2007), pp. 680-691
[10.]
C. Casanova, T. Cote, J.P. Torres, A. Aguirre, J.M. Marin, V. Pinto, et al.
Inspiratory-to-total lung capacity ratio predicts mortality in patient with chronic obstructive pulmonary disease.
Am J Respir Crit Care Med, 171 (2005), pp. 591-597
[11.]
T. Oga, K. Nishimura, M. Tsukino, S. Sato, T. Hajiro.
Analysis of the factors related to mortality in chronic obstructive pulmonary disease. Role of exercice capacity and health status.
Am J Resp Crit Care Med, 167 (2003), pp. 544-549
[12.]
J. Marin, E. Servera, G. Ferris, M. Blasco, C. Gonzalez.
Factores predictiovs del reingreso hospitalario en la agudización de la EPOC moderada-grave.
Arch Bronconeumol, 40 (2004), pp. 502-507
[13.]
B.R. Celli, C.G. Cote, J.M. Martín, C. Casanova, M. Montes de Oca, R.A. Méndez, et al.
The body-mass index, airflow obstruction, dyspnea, and exercice capacity index in chronic obstructive pulmonary disease.
N Egl J Med, 350 (2004), pp. 1005-1012
[14.]
R.J. Curtis, R.A. Deyo, L.D. Hudson.
Health-related quality of life among patients with chronic obstructive pulmonary disease.
Thorax, 49 (1994), pp. 162-170
[15.]
M. Ferrer, J. Alonso, J. Morera, R. Marrades, A. Khalaf, M.C. Aguar, et al.
Chronic obstructive pulmonary disease stage and health-related quality of life.
Ann Inter Med, 127 (1997), pp. 1072-1079
[16.]
M. Ferrer, J. Alonso, L. Prieto, V. Plaza, E. Monsó, R. Marrades, et al.
Validity and reliability of the St George‘s Respiratory Questionnaire after adaptation to a different language and culture: the Spanish example.
Eu Respir J, 9 (1996), pp. 1160-1166
[17.]
R. Güell.
Calidad de vida relacionada con la salud.
Rehabilitación respiratoria, pp. 61-72
[18.]
A.A. Okubadejo, L. O'Shea, P.W. Jones, J.A. Wedzicha.
Home assessment of activities of daily living in patients with severe chronic obstructive pulmonary disease on long-term oxygen theraphy.
Eur Respir J, 10 (1997), pp. 1572-1575
[19.]
M.W. Elliot, A.K. Simonds, M.P. Carroll, J.A. Wedzicha, M.A. Branthawaite.
Domiciliary nocturnal nasal intermittent positive pressure ventilation in hypercapnic respiratory failure due to chronic obstructive lung disease: effects on sleep and quality of life.
Thorax, 47 (1992), pp. 342-348
[20.]
J.E. Heffner, B. Fahy, L. Hilling, C. Barbieri.
Attitudes regarding advance directives among patients in pulmonary rehabilitation.
Am J Respir Crit Care Med, 154 (1996), pp. 1735-1740
[21.]
P. Singer.
Advance directives in COPD.
Arch Chest Dis, 50 (1995), pp. 62-63
[22.]
W.R. Mower, L.J. Baraff.
Advance directives effect of type of directive on physicians‘therapeutic decisions.
Arch Inter Med, 153 (1993), pp. 375-381
[23.]
A. Updaya, V. Muralidharan, N. Thorevska, Y. Amoateng-Adjepong, C.A. Manthous.
Patient, physisician, and family member understanding of living wills.
Am J Resp Crit Care Med, 1666 (2002), pp. 1430-1435
[24.]
J.E. Heffner, B. Fahy, L. Hilling, C. Barbieri.
Outcomes of advance directive education of pulmonary rehabilitation patients.
Am J Respir Crit Care Med, 155 (1997), pp. 1055-1059
[25.]
P. Singer, D.K. Martin, J.V. Lavery, E.C. Thiel, M. Kelner, D.C. Mendelssonh.
Reconceptualizing Advance Care Planing from the Patient‘s Perspective.
Arch Inter Med, 158 (1998), pp. 879-894
[26.]
D.K. Martin, E.C. Thiel, P.A. singer.
A New Model of Advance Care Planning. Observations from people with HIV.
Arch Intern Med, 159 (1999), pp. 86-92
[27.]
I. Saralegui, J.L. Monzón, M.C. Martín.
Instrucciones previas en medicina intensiva.
Med Intensiva, 28 (2004), pp. 256-261
[28.]
A. Esteban, F. Gordo, F. Solsona, J. Alía, J. Caballero, C. Bouza, et al.
Withdrawing and withholding life support in the intensive care unit: a Spanish prospective multi-centre observational study.
Intensive Care Med, 27 (2001), pp. 1744-1749
[29.]
C. Santos de Unamuno.
Documento de voluntades anticipadas: actitud de los pacientes de atención primaria.
Aten Primaria, 32 (2003), pp. 30-35
[30.]
A. Couceiro.
Las directivas anticipadas en España: contenido, límites y aplicaciones clínicas.
Rev Calidad Asistencial, 22 (2007), pp. 213-232
[31.]
K. Sullivan, P. Hébert, J. Logan, A. O’Connor, D. McNeely.
What Do Physicians Tell Patients With End-Stage COPD About Intubation and Mechanical Ventilation?.
Chest, 109 (1996), pp. 258-264
[32.]
J.R. Curtis, M.D. Wenrich, J.D. Carline, S.E. Shannon, D.M. Ambrozy, P.G. Ramsey.
Patients’ perspectives on physicians‘skills at end-of-life care: differences between patients with COPD, cancer, and AIDS.
Chest, 122 (2002), pp. 356-362
[33.]
S.J. Guthirie, K.M. Hill, M.E. Meurs.
Living with severe COPD: a qualitative exploration of the experience of patients in Leed.
Respir Med, 95 (2001), pp. 196-204
[34.]
J.R. Curtis, R.A. Engelberg, E.L. Nielsen, D.H. Au, D.L. Patrick.
Patient-physician communication about end-of life care for patients with severe COPD.
Eur Respir J, 24 (2004), pp. 200-205
[35.]
E. Knauft, E. Nielsen, R. Engelberg, D. Patrick, J.R. Curtis.
Barriers and Facilitators to End-of-Life-Care Communication for Patients with COPD.
Chest, 127 (2005), pp. 2188-2196
[36.]
A.M. Yohannes.
Palliative care provision for patients with chronic obstructive pulmonary disease.
Health Qual Life Outcomes, 5 (2007), pp. 17-22
[37.]
J. Abal, I. Parente, R. Almazán, J. Blanco, M.E. Toubes, P. Marcos.
Cáncer de pulmón y EPOC: una asociación frecuente.
Arch Bornconeumol, 45 (2009), pp. 502-507
[38.]
P. Edmonds, S. Karlsen, S. Khan, J. Addington-Hall.
A comparison of the palliative care needs of patients dying from chronic respiratory diseases and lung cancer.
Palliative Medicine, 15 (2001), pp. 287-295
[39.]
J. Escarribill, J.J. Soler, C. Hernández, E. Servera.
Recomendaciones sobre la atención al final de la vida en pacientes con EPOC.
Arch Broconeumol, 45 (2009), pp. 297-303
Copyright © 2010. Sociedad Española de Neumología y Cirugía Torácica
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